Thursday, October 20, 2011

The Good, the Bad and the Ugly

Today, like most days, was filled with a lot of ups and downs. Aaron had his first appointment with the Orthopedist today ( so that now makes nine doctors he sees). He isn't having any serious problems, we just wanted to have him evaluated to make sure he is learning to walk properly. His leg x-rays were typical for a child with Down syndrome. The doctor we saw has a lot of experience with special needs, his own twin boys have CP. He was incredibly nice (which is actually quite unusual for an orthopedist in my experience) and very knowledgeable. Other than looking at his legs, we also discussed checking him for Atlanto-Axial Instability (AAI). It is a condition that sometimes occurs in people with Down syndrome. Specifically, AAI occurs when the ligaments in the neck are loose, creating too much space between the cervical vertebrae and making it easier for the spinal cord to get pinched between the vertebrae. Obviously that would be very serious if that were to happen. So it is recommended that all kids with DS have neck x rays during early childhood. We'll wait another year or two until aaron is actually able to lay still. Overall, it was a good visit. He didn't recommend any kind of leg braces or orthotics and said we just need to come back once a year! Woohoo! That is the kind of doctor's appointment I like.

Of course the day went downhill from there. After Aaron's nap, we went to Sport Clips so both boys could get hair cuts. Jacob did great but Aaron was having no part of it. We have been there two or three times before and he has gotten a hair cut without any serious issues. But it didn't work out that way this time. Despite all of my best tricks, he cried and yelled the entire time and we left without a hair cut. I suppose the lesson I learned this time is that we shouldn't attempt hair cuts in the evening. Hopefully we can recover from this experience and try again sometime in the next week or two. He definitely still needs a hair cut!

Hopefully tomorrow will be a better day...

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